Referrals.

To make an urgent referral, please call our 24/7 number:

Referrals can come from any source as long as the child’s parent or carer has given their consent.

We welcome referrals of children and young adults with life-threatening and life-limiting conditions in London who meet our acceptance criteria which is outlined below.

Before filling in our referral form, please ensure you have read our referral criterial and information about the catchment area we support. If you need to make an urgent referral for end-of-life care, please first call directly on 020 7540 0243.

Acceptance criteria.

Our acceptance criteria for using our services is based on the four broad categories of life-limiting conditions described by children’s hospice charity, Together for Short Lives. All referrals must fit in to one of these categories:

Group 1

Life-threatening conditions for which curative treatment may be feasible, but can fail. Where access to palliative care services may be necessary when treatment fails e.g. cancer (usually solid tumours), irreversible organ failures of heart, liver, kidneys.

Group 2

Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in other activities (e.g. cystic fibrosis).

Group 3

Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years (e.g. Batten disease, mucopolysaccharidoses, muscular dystrophy).

Group 4

Irreversible, but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death (e.g. severe cerebral palsy, neurodisability, birth injury, or an insult that follows an illness such as meningitis, encephalitis or head trauma). 

Criteria for this category
  • Total body involvement with poor head control
  •  Severe scoliosis that compromises respiratory function
  • Ongoing need for intervention in order to maintain respiration
  • Regular apnoeic episodes
  • Poorly controlled seizures despite optimum treatment
  • Frequent unplanned hospital admissions
  • Underlying complex nutritional condition which, without accurate assessment, would be life-threatening.

Our process.

Fill out the form above.

Take time to fill out our referral form and provide all relevant details for our team, along with up to date clinical information.

Referral is assessed.

Referrals are assessed at weekly multi-disciplinary meetings and families and / or referrers will be contacted within seven days with a decision.

If referral is accepted.

You will be invited for a tour of the hospice.

A member of our residential care team will work with you to create a care plan for your child.

A day care session or overnight stay is arranged.

We’ll arrange further care and support that is bespoke to your family’s needs.

Our values
We create a happy and positive environment for all.
We are respectful and welcome people from all our diverse communities.
We value openness and integrity in all our dealings.
Our dedicated staff and volunteers put children and families at the centre of our work.
We're passionate about achieving excellence in all we do.

Contact

If you have any additional questions or queries, please get in touch with our care team below.

Vicky Gillingham

Clinical Caseload Manager