Summer 2018 at Richard House

Published: September 20, 2018

Thanks to YOU, over the summer children and families at Richard House had the opportunity to participate in a variety of trips providing the rare opportunity for them to spend quality time together as a family. For some families, outings with children who have life-limiting conditions is difficult and in other cases almost impossible. However, with your support our families were able to visit a variety of places including Brighton, Paradise Wildlife Park and London Zoo.

14 year old Adam loved the trip to London Zoo, especially the llamas. His mum said, “We know Richard House is a safe place where Adam gets the care he needs, and my husband and I have the chance to take a break. Richard House provides us with a sense of security, there is a trust that has been built. The activities and trips mean that there is somewhere for us to go, and we can go out as a family.”

Once upon a time: How four-year-old Leyana’s ballet dream comes true

Like many children her age, four-year-old Leyana Baltaji from Bow in east London had a dream. Leyana loves ballet and dreamed of dancing alongside a real ballerina. Last month, a ballet workshop at Richard House Children’s Hospice helped Leyana’s dream come true by giving her the chance to transform herself into a ballerina for the day. Ecstatic Leyana dressed up in her tutu and ballet shoes to dance alongside a real ballerina while staff, children and families at Richard House proudly looked on.

Leyana’s dad, Luay said,

Leyana loves going to Richard House. She gets such a warm welcome from everyone and gets so much from her time there. She so enjoys the activities Richard House puts on, like the ballet workshop. Ballet is her passion and to dance with a real ballerina was a dream come true for Leyana.

Leyana has been coming to Richard House since she was a baby. Leyana has Jeune Syndrome, a very rare disease that severely affects vital functionalities in her body. So she can breathe, she has a tracheostomy tube which is attached to a ventilator.

Knowing how much the occasion meant to her, staff at the hospice made a short video for Leyana and her parents to treasure. The video shows both her ballet routine and Leyana proudly taking her final bow.

Leyana’s mum, Lubna, told Richard House that Leyana was thrilled to watch herself on screen explaining that activities at Richard House had “given Leyana a huge amount of confidence.

Family days and activities kept the summer buzzing starting with the circus coming to teach our children some plate  spinning and juggling skills. Eid was celebrated with a family party with music and dancing straight from Bollywood. We had some interesting visitors from Zoolab, including Darwin the lizard and other slithery friends. The fun finished with our summer production of ‘we’re going on a friend hunt…’

More fun activities and trips are planned for October and with your support we can continue supporting children, siblings and parents through challenging times.

With the children back at school, we ran a mums’ pamper day. One mum said,

I love the support I get from the mums’ group. It’s a small group but I can relax and be myself, there is no judgement, I  don’t have to explain myself and people just lift you up.

Thank you for helping us to lift-up every member within our families.