Meet Musa

Meet Musa - a truly special young boy who has been coming to Richard House for years. His visits allow his mother Mrs Aktar some space to breathe whilst Musa plays and has fun.

Introducing Musa

Musa was diagnosed with Acute Myeloid Leukaemia when he was 6 months old. This is a rare and aggressive type of cancer affecting the white blood cells. The body needs white blood cells to fight infections, without them the immune system is left damaged, leaving the body open to illness.

Musa was treated with chemotherapy and put on strong immunosuppressant medications, both of which left him with a vastly weakened immune system. 3 years after his diagnosis, Musa sadly relapsed and then needed a bone marrow transplant.

Coming to Richard House has been a great comfort, just knowing that there were other families out there, going through something similar.

Musa couldn’t go outside or even play with other children. Leaving him and my family feeling isolated and cut off from the world.

Each day brought its own challenges. Musa would often have seizures and have to be taken to hospital. On a typical day he would need to be woken to be given his medicine through a Hickman Line that goes straight into his heart and milk through a peg feeding tube directly into his stomach.

Keeping an eye on fluid intake was crucial. Musa has spent most of his life in hospital but when he was at home everything had to be kept sterile and clean, this was a vital part of everyday life to help Musa to stay free from infections.

Thankfully Richard House provided a safe, sterile environment where my whole family could be welcomed. It was a place to detach from everyday family life.

The children could play and be happy. This gave Musa’s siblings time and space to have essential 1:2:1 counseling sessions. The staff also provided vital emotional support to me. The staff and volunteers were always caring and compassionate.

It made me feel heard and understood. The people at Richard House, both parents and staff alike, just got it, you didn’t have to explain what a Hickman Line was. You could still laugh even through the difficult times.

MRS AKTAR | Musa’s mother

Learn more about how Richard House has changed children and families lives below.

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Donation Total: £75.00

A regular donation to Richard House become a steady source of support for children and families facing life-limiting health conditions. Your consistent contribution ensures a stable foundation for vital care, creating a lasting impact that brings comfort, joy, and hope to those who need it most.

To purchase messy play supplies to help a life-limited child to explore, create and build confidence

To buy sensory toys for children with complex health needs, to improve their concentration and have fun!

Gives one hour of respite care in the hospice, providing some relief for parents who have to care around the clock.

Meet Hope

Meet Hope – an amazing girl who is a massive part of the Richard House family. Her regular visits bring joy to both her and the staff at Richard House.

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