Our stories

 

Abdullah was just two-and-a-half when doctors diagnosed him with Pompe Disease, a rare and debilitating muscle condition. Read more

 

 

Ishmael’s mother had to wait nearly a year to bring her baby home from Hospital. She now utilises the respite service at Richard House. Read more

 

 

joysie-de-silva-piedade-with-mum-ana

Ana’s daughter Joysie was born with Cerebral Palsy, her first three years were spent in and out of hospital without knowing what the future will hold. Joysie is now 8 years old and she still doesn’t talk or walk. Read more

 

 

Hope is a cheerful 3 and a half year old child who suffers from a rare medical condition called ‘Neutropenia’; a condition in which the number of white blood cells in the blood stream is significantly decreased affecting the body’s ability to fight off infection. Read more

 

wolf-and-saraWhen Sara took part in some fundraising for the children’s hospice near to her work, she had no idea that one day she would be in need of the very support she was raising money for. Read more

 

 

Murad and music therapist Anita at an art and music dayGiven only 48 hours to live, Murad was born with an incomplete intestinal tract, kidney failure and other life-threatening conditions. Read more

 

 

 

Haider HussainHaider is a 13 year-old boy with mitochondrial disease. He is a familiar sight at Richard House, where he has been coming for over 10 years. Here his mother, Ruksana, tells the story of their family and their close relationship with Richard House. Read more.

 

CalvinWatch this short film about the story of Calvin Muwanga, who has been a familiar face at Richard House for many years. The film was produced as part of the Little Stars project, which tells the stories of young people who are living with life-limiting illnesses all over the world.

 

Chelia thumbCheila Conceiçã loves the variety of her job as a palliative care nurse at Richard House. Read more.

 

 

 

Elijah Cariazo with parentsWhen Elijah Cariazo was diagnosed with myotubular myopathy he was expected to live only a few weeks. Despite this, Elijah is now nearly five years old and the family are enjoying their time together. Read more.

 

 

Ronak with Rachel from the family support team enjoying an Young Adult Group session at Richard HouseRonak Patel is a young adult with Duchenne muscular dystrophy, a condition that results in progressive muscle weakness. Read more.

 

 

Julia Masters is one of our outstanding volunteers. She tells us what it is like for her at Richard House. Read more.

 

 

 

George and Christina with Angelo FlourentzouChristina and George Flourentzou tell the story of their son Angelo, who died aged seven months, and the support Richard House gave them. Read more.

 

 

Arlo enjoying a summer activityArlo Wilson has Dravet Syndrome, a very rare form of severe epilepsy that also affects development. His mother Galia talks about the family’s experience and the help that Richard House have provided. Read more.