Musa and his ‘cancer journey story’
“Its places like Richard House that ensure his cancer journey isn’t all doom and gloom!”
Musa suffered from leukaemia at the age of 10 months. He was in remission for 34 months, but sadly relapsed and as a result he had to have a bone marrow transplant almost two years ago. Unfortunately, Musa’s body began rejecting the donor cells as he is left suffering from Graft versus Host Disease (GvHD). This means he is immune compromised and as a result he cannot attend school. He is on several medicines, requires PEG feeding through a tube, regularly falls sick and is hospitalised suddenly and frequently. He requires weekly blood tests and line care.
Now 5, he is an energetic, charismatic and playful child. He is quite outgoing but on some occasions he can be shy. He loves to tell stories, especially of all the different experiences he has had.
Mum, Sultana, said: “Although he is living with a life limiting condition no one will be able to tell the struggles he faces, or the obstacles he has overcome when they see just how full of life he is.”
She continued: “Musa and his siblings absolutely love it at Richard House. We were always saying no to trampoline parks, soft play centres and other play facilities due to Musa’s health and risk of infection, but we are able to come to Richard House and safely use the play facilities and attend some really good parties.
“The staff are so warm and welcoming and it’s just such a wholesome place to be. Its places like Richard House that ensure his cancer journey isn’t all doom and gloom!”
Musa loves football and had an amzing day as West Ham mascot, thanks to Richard House. It meant a huge deal to him. He is restricted from doing everyday things that kids his age normally do, so whatever special things he is able to do is very cherished. I know it will be a feature on his story telling cancer journey!”